This is a great question. With a name like Rare Patient Voice, we just recruit rare patients, right?
No! When we started Rare Patient Voice 6 years ago, we just assumed our clients would only be interested in rare patients and caregivers, the difficult-to-find. But we soon got requests for non-rare, and patients reached out to us and asked to join with non-rare conditions like asthma, rheumatoid arthritis, and depression. So, we said, “Why Not?”
Now we have many non-rare patient types, such as Diabetes, Allergies, Alzheimer’s, Macular Degeneration, Anxiety, ADHD, all kinds of cancer, heart disease, and migraine, in addition to the rare conditions. We now have 96,000 patients and caregivers. Please go to our website to see our patient counts: rarepatientvoice.com/for-researchers/patient-panels
So why do we call it Rare Patient Voice if it is not just rare? I hate to change the name. You’ll just have to remember to contact us for any patient recruiting needs, rare or not.
I like to call it, “Medium Rare.” There’s a little pink in it!
