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Rare Patient Voice - A Konovo Company

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

A Testimonial from Glenna Crooks, Strategic Health Policy International

January 18, 2023 Laura Mullen

“Working with the RPV team was a pleasure from start to finish. Each team member delivered flawless support, including during some necessary hand-offs from one to the next. They were instantly responsive and careful in explaining the process, the current status, and the likely project completion date. As you know, for this project, we set out to identify veterans with rare diseases. Even though RPV has not collected that data in the past, the team suggested ways to gather it from the current database and got the study underway within a few days. Better yet, they took the initiative to adapt RPV’s platform to ask that question of those who sign-up in the future, which will provide us with a readily-accessible source of information we’ve not had. I am grateful on both counts. It is wonderful to have the data in hand now and to know that more will be easily accessible in the future! This was my first experience with RPV. I’m looking forward to others in the future.”

Glenna Crooks, PhD

The NetworkSage

President, Strategic Health Policy International, Inc.

Filed Under: Business

Rare Patient Voice

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