I Have a Voice That Deserves to Be Heard!
Why Sign Up with Rare Patient Voice?
- Provide your input as a patient or family caregiver to improve products and services.
- Help companies and researchers focus more on your disease.
- Earn rewards for participating in interviews and surveys.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Hear patients and caregivers relate why sharing their voice is important to them, and what their experience with Rare Patient Voice has been.
Interested in sharing your story through a video recording? Sign up here.
Click the arrow to advance to more videos!
Patient Blog Posts
RPV on Mental Health & Rare Disease in Rare Revolution
Living with a rare disease isn’t just a physical battle—it carries a profound mental health burden, from isolation to uncertainty about the future. Raising awareness means recognizing the emotional toll … READ MORE
Wes Michael Discusses Mental Health and Rare Disease on the Caregiver Relief Podcast
Wes Michael of RPV recently visited the Caregiver Relief Podcast to talk about the “shadows” of the rare disease experience, including the mental health burden on caregivers, the frustration … READ MORE
Client Blog Posts
RPV on Mental Health & Rare Disease in Rare Revolution
Living with a rare disease isn’t just a physical battle—it carries a profound mental health burden, from isolation to uncertainty about the future. Raising awareness means recognizing the emotional toll … READ MORE
RPV Marks Rare Disease Day 2026 With Support for Rare Community
On Rare Disease Day, we recognize the more than 300 million people worldwide living with a rare disease — and the countless family members, friends, and caregivers who help to … READ MORE
