What's New at Rare Patient Voice?
Study Results
What would make clinical trials more patient-friendly? Earlier this year, RPV surveyed 1,000 U.S. patients on this topic and others, and their feedback provided some eye-opening insights.
Download the Patients at the Center white paper for patient and family caregiver opinions on taking part in research studies, decentralized clinical trials in particular.
Even If You Didn’t Qualify,Your Time Is Valued
Your time is valued, whether you qualify for a study or not. Each month we automatically enter those who tried but did not qualify for a study into a drawing for a $100 Amazon gift card. The randomly chosen winner is then notified via email. Congratulations to our latest winner, Blair!
Partner Corner
Color Me Seen creates bright, joyful coloring books where children with medical devices and differences can see themselves simply being kids playing, laughing, imagining, exploring, and having fun. No scary or clinical pages, just happy, familiar childhood moments made to feel warm, colorful, and full of joy. Visit us at: https://www.instagram.com/colormeseen/
Current Study Opportunities
We have hundreds of studies open for patients and caregivers! The list of studies we are working to fill can be found at https://rarepatientvoice.com/patients/study-opportunities/.
1. If you are already a member of the Rare Patient Voice community and would like to be considered for an open study, please email study.inquiries@rarepatientvoice.com with the name of the study you are interested in.
2. If you are NOT a member, please click here to complete the sign-up process and include all medical conditions to be considered for one or more of the studies.
Please feel free to share this page with friends or family who might be interested!
Frequently Asked Questions
Why sign up with Rare Patient Voice?
Who knows better than you about your journey and experiences? We connect you with researchers who are developing products and services which can help you and others with your condition. These researchers need patient input so that they develop products and services that have a meaningful impact on patients’ lives
How will I be paid?
You will earn $120 (typically) per hour for participating in studies. We pay by check to ensure patients/family caregivers can use their compensation in any way they wish, and now provide the option for patients/family caregivers to sign up for electronic payments.
About Rare Patient Voice
Rare Patient Voice connects patients and caregivers with researchers who are developing products and services to help you and others with your condition. RPV has paid patients and family caregivers over $21 million since 2013 for participating in research studies.
