Rare Patient Voice likes it best when we can meet our members in person! We are often at patient events. Below are a few that are coming up. If your patient group is having an event, let us know, we may want to help sponsor it, come and meet you and your fellow patients!
EVENT | DATE | LOCATION |
40th Annual HDSA CONVENTION | June 26 - 28, 2025 | Indianapolis, IN |
APFED's 23rd Annual Patient Education Conference | June 26 - 28, 2025 | Raleigh-Durham, NC |
31st MAGIC Foundation Annual Convention | July 10 - 13, 2025 | Lombard, IL |
Advancing Research and Care: Propionic Acidemia Conference | July 11 - 12, 2025 | Kidron, OH |
2025 International LGMD Conference | July 18 - 21, 2025 | Orlando, FL |
ISMRD’s 7th International Family and Scientific Conference | August 7 - 9, 2025 | Minneapolis, MN |
UOAA’s 9th National Conference | August 14 - 16, 2025 | Orlando, FL |
CancerCon | August 21 - 24, 2025 | Washington, DC |
TMA’s 2025 Global Myositis Patient Conference | September 18 - 21, 2025 | Dallas, TX |
2025 US PBC Conference | September 19 - 21, 2025 | Chicago, IL |
Abilities Expo - Ft. Lauderdale | October 17 - 19, 2025 | Ft. Lauderdale, FL |
Little Legs Big Heart 2025 Skeletal Dysplasia Conference | October 23 - 26, 2025 | West Palm Beach, FL |
HOPE Charities Conference 2025 | November 6 - 8 , 2025 | Lake Buena Vista, FL |
The 13th Annual Epilepsy Awareness & Education Expo |
November 10 - 11, 2025 | Anaheim, CA |
Abilities Expo - Dallas | December 5 - 7, 2025 | Dallas, TX |
Would you like us to attend your patient and caregiver conference, expo, or summit?
Please contact us at patientadvocacyteam@rarepatientvoice.com.