Rare Patient Voice (RPV) attends patient and caregiver events to connect with patients, caregivers, and families across a wide range of disease communities. We are always looking for new events to attend, as well as opportunities to connect with both new and familiar communities.
Below are some upcoming events where you can find us. If your group has an upcoming patient or caregiver event, we’d love to hear about it.
| EVENT | DATE | LOCATION |
| NCAN 2026 Miami NET Patient Conference | March 21, 2026 | Neuman Alumni Center Miami, FL |
| Abilities Expo - Los Angeles | March 27-29, 2026 | Long Beach Convention Center, Long Beach, CA |
| 2026 Annual Ataxia Conference | April 9-11, 2026 | Rosen Centre Hotel Orlando, FL |
| Epilepsy Awareness Day at Walt Disney World | April 25-26, 2026 | Disney's Contemporary Resort, Orlando, FL |
| CancerCon | April 30 – May 3, 2026 | Hyatt Regency Seattle, Seattle, WA |
| United in Vision 2026 | June 12 - 13, 2026 | Fort Worth Convention Center, Fort Worth, TX |
| The 20th NFXF International Fragile X Conference | July 16 - 19, 2026 | Louisville Marriott Downtown Louisville, KY |
| Abilities Expo - Phoenix | September 11-13, 2026 | WestWorld of Scottsdale, Scottsdale, AZ |
| Abilities Expo - Orlando | October 9 - 11, 2026 | Osceola Heritage Park Events Center, Orlando, FL |
Would you like us to attend your patient and caregiver conference, expo, or summit?
Please contact us at patientadvocacyteam@rarepatientvoice.com.
