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Rare Patient Voice - A Konovo Company

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Amy Ikejiakuv, Qualitative Team Project Manager

Amy Ikejiakuv - Qualitative Team Project Manager

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Amy is a compassionate, patient-centered professional with a background in neuroscience from Duke University. She began her career in academic research before moving into clinical trials coordination and patient navigation, where she discovered a passion for helping patients feel truly heard, respected, and supported throughout the research journey.

Today, Amy brings that same dedication to her role as a Qualitative Team Project Manager at Rare Patient Voice. She manages qual studies involving rare disease patients and caregivers, handling projects from recruitment and screening through data quality review. Amy cares deeply about creating space for patients and caregivers to share their experiences and ensuring those voices meaningfully shape healthcare research and innovation.

Known for blending thoughtful organization with genuine empathy, Amy approaches her work with both structure and heart. She is motivated by research that not only advances knowledge, but also empowers individuals and helps drive real-world impact.

  • Hobbies: Working out, beauty and skincare, spending time with friends and family, reading, listening to music, and watching documentaries
  • Pets: None yet — but future owner of a cinnamon ragdoll
  • Likes: Sunshine, traveling, spicy foods, and anything passion fruit or guava flavored
  • Dislikes: Bugs, inhumanity, chocolate, loud noises, and heights
  • Fun Fact: I am an enthusiastic collector of perfumes and teas; my collection might just qualify me for an episode of TLC’s My Strange Addiction.
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Towson, Maryland 21286
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Regular business hours are Monday through Friday, 9am-5pm ET.

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