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About Our Referral Partner:Amy Gietzen is a Columnist for Scleroderma News. She resides in Buffalo NY, with her amazing, supportive family, friends, and her 3 cats. She is a patient advocate and public speaker, who has traveled across the country educating students, clinicians, and medical professionals about the disease Scleroderma. Amy was diagnosed with Systemic Scleroderma in 2001 at the age of only 19. As a consequence of her scleroderma, she has also developed Idiopathic pulmonary fibrosis, and pulmonary hypertension, along with some major heart rhythm issues in 2020 she received the Ernest Dupont award from the Steffens Scleroderma Foundation based out of Albany. Where She has been a board member for 2 years. Amy was honored with the Volunteer of the year award from the National Scleroderma Foundation. She is also the creator and facilitator of the young adult virtual support group SYNC. Amy is on the National foundationÂs committee for Awareness and is the Chair of the Patient Education and Support committee for the National Scleroderma Tristate Chapter. She has been a Board member for the Tristate Chapter for 3 years. Amy also is highly involved with The Scleroderma Patient-centric Intervention Network (SPIN) for over 7 years and is on several patient advisory boards.