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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
      • Multiple Myeloma
      • Epilepsy
      • Non-Small Cell Lung Cancer
      • HIV
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
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Helping patients and caregivers share their voices

Find Us in the Community

Rare Patient Voice likes it best when we can meet our members in person!  We are often at patient events. Below are a few that are coming up. If your patient group is having an event, let us know, we may want to help sponsor it, come and meet you and your fellow patients!

EVENT DATE LOCATION
GayDays Orlando June 1-4, 2023 Orlando, FL
The 25th Annual Family Cafe June 9-11, 2023 Orlando, FL
National Convention - Prader Willi Syndrome Association June 22-24, 2023 Lake Buena Vista, FL
FOD Family Support Group Meetup June 24, 2023 Bethesda, MD
Aicardi Syndrome Family Conference July 2023 Denver, CO
15th International CHARGE Syndrome Conference July 20-23, 2023 Orlando, FL
Bleeding Disorders Conference August 17-19, 2023 National Harbor, MD
Cancer Con August 17-20, 2023 Atlanta, GA
Abilities Expo - Phoenix September 8-10, 2023 Scottsdale, AZ
Abilities Expo - Fort Lauderdale October 13-15, 2023 Fort Lauderdale, FL

Would you like us to come to your event?

Please contact us at contactus@rarepatientvoice.com.

 

Latest Blog Posts

  • Today’s Caregiver Magazine Honors RPV with a 2023 Caregiver Friendly® Award
  • Weekly Warriors: Meet Katie and Jolene
  • RPV’s Pam Cusick Interviewed on the “Desperate for a Diagnosis” Podcast
  • Weekly Warrior: Meet Keyla
  • Weekly Warrior: Meet Brenda

Check Out Our YouTube Channel!

https://youtu.be/cfjkqh5Ykp0
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What’s New at Rare Patient Voice?

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949


Visit our international site, rarepatientvoice.global


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  • What is the Rare Patient Voice referral program?
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Rare Patient Voice, LLC, Market Research, Towson, MD

Rare Patient Voice, LLC, Market Research, Towson, MD

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