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    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
      • Multiple Myeloma
      • Epilepsy
      • Non-Small Cell Lung Cancer
      • HIV
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • The Long and Winding Road to Care
    • Health Literacy Initiative’s PSA
    • Patient Perspectives on Clinical Trial Participation
    • Patient Journeys and Insights for Oncology and Rare Diseases
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping patients and caregivers share their voices

Giving Back

During our first ever company meeting in Florida, Rare Patient Voice packed and delivered snack bags to the local Ronald McDonald House in Tampa Bay. Ronald McDonald House Charities provide lodging for families spending time at hospitals far from home.

 

 

 

 

 

MREFRare Patient Voice was proud to participate with our marketing research industry colleagues in the MREF Race Around the World for Education fundraiser in 2021, which raised over $100,000 for UNICEF education programs.

So proud of the Rare Patient Voice LLC team for supporting the #HopeReads program at the Happy Hope Factory! Our team recorded themselves reading children's books which will be shared with hospitalized children nationwide. For more information about how your team can get involved, click here: https://1l.ink/LLWQR32

 

Rare Patient Voice-sponsored student & non-profit studies

Rare Patient Voice has helped a number of students and non-profits with their research by allowing access to patients and caregivers at no cost. Some of the studies we have supported are listed below.

University/Organization Topic Type
Seton Hall University Sickle Cell Disease (SCD) Quantitative
University of Texas Sickle Cell Disease (SCD) Quantitative
DeltaQuest Hemophilia A&B Quantitative
University of Mississippi Hemophilia Quantitative
Indiana University Ovarian Cancer Quantitative
DeltaQuest Hemophilia Quantitative
Xavier University Endometrial Cancer Quantitative
Kent State University Cancer Qualitative
University of Minnesota Hemophilia Quantitative
Stanford University Breast Cancer Quantitative
DeltaQuest MS Qualitative
University of Mississippi Hemophilia Quantitative
Stanford University Breast Cancer Quantitative
University of Maryland Baltimore Older Couples Qualitative
University of Mississippi Parkinson's Disease Quantitative
DeltaQuest DMD Quantitative
Rice University Alzheimer's Disease Quantitative
University of Mississippi Sickle Cell Disease (SCD) Quantitative
Xavier Prostate Cancer Quantitative
University of Mississippi Alzheimers and Autism Quantitative
University of Mississippi Rheumatoid Arthritis Quantitative

Latest Blog Posts

  • Weekly Warrior: Meet Eric
  • Meet Our Team: Chris Cooper, Senior Project Manager
  • Weekly Warriors: Meet Morgan and Maddison
  • Weekly Warriors: Meet Sebastian and Christopher
  • A Special Song for Rare Disease Day 2023

Check Out Our YouTube Channel!

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Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949


Visit our international site, rarepatientvoice.global


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Rare Patient Voice, LLC, Market Research, Towson, MD

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