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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Videos
    • Meet The Patients
    • You Ask, We Answer
    • Get To Know
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

Giving Back

So proud of the Rare Patient Voice LLC team for supporting the #HopeReads program at the Happy Hope Factory! Our team recorded themselves reading children's books which will be shared with hospitalized children nationwide. For more information about how your team can get involved, click here: https://1l.ink/LLWQR32

Rare Patient Voice-sponsored student & non-profit studies

Rare Patient Voice has helped a number of students and non-profits with their research by allowing access to patients and caregivers at no cost. Some of the studies we have supported are listed below.

University/Organization Topic Type
DeltaQuest Hemophilia A&B Quantitative
University of Mississippi Hemophilia Quantitative
Indiana University Ovarian Cancer Quantitative
DeltaQuest Hemophilia Quantitative
Xavier University Endometrial Cancer Quantitative
Kent State University Cancer Qualitative
University of Minnesota Hemophilia Quantitative
Stanford University Breast Cancer Quantitative
DeltaQuest MS Qualitative
University of Mississippi Hemophilia Quantitative
Stanford University Breast Cancer Quantitative
University of Maryland Baltimore Older Couples Qualitative
University of Mississippi Parkinson's Disease Quantitative
DeltaQuest DMD Quantitative
Rice University Alzheimer's Disease Quantitative
University of Mississippi Sickle Cell Disease (SCD) Quantitative
Xavier Prostate Cancer Quantitative
University of Mississippi Alzheimers and Autism Quantitative
University of Mississippi Rheumatoid Arthritis Quantitative

Latest Blog Posts

  • Rare Patient Voice Expands to Europe
  • Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner
  • Thanks to WhatNext, Our Terrific Cancer Patient Partner
  • The North Wind and the Sun
  • Should companies do marketing to their market research panels?

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What’s New at Rare Patient Voice?

Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(410) 218-0527

For Patients

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