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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Ginger Segala, Business Development Associate

Ginger Segala, Business Development Associate

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Ginger earned a BA from the University of Maryland, College Park and her Masters in Social Work from University of Maryland at Baltimore. As a member of the Rare Patient Voice Business Development Team since 2021, she works directly with clients to explain RPV’s service offerings and provides feasibility and pricing for market research studies. She is advocacy focused and strives to increase opportunities for all patients and family caregivers who want to have their voices heard. Prior to joining RPV, Ginger served her community for many years in leadership roles in the local PTAs, and music booster organizations. She continues her role as Chair of Howard County Parents for School Music in her local jurisdiction.

  • Hobbies: Hiking, traveling, music advocacy, attending concerts
  • Likes: Spending time with good friends and family, watching my children become fantastic adults, beaches
  • Dislikes: Inability to lose weight by eating chocolate cake every day
  • Fun Facts: Ginger is a twin and loves to hang out with her 4 sisters and brother!
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Latest Blog Posts

  • 10 Facts for 10 Years of RPV: Video #9 – We recruit for all types of research
  • Weekly Warrior: Meet Connie
  • 10 Facts for 10 Years of RPV: Video #8 – The RPV team is terrific!
  • 10 Facts for 10 Years of RPV: Video #7 – Security is key at RPV!
  • 10 Facts for 10 Years of RPV: #6 – Patients Love Sharing Their Voices!

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Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
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(443) 986-1949


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Rare Patient Voice, LLC, Market Research, Towson, MD

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