Our outreach team has connections with over 3,000 referral partners who can help us find additional patients for studies. While we have had success with many conditions, we cannot guarantee anyone new for your study. We do not charge for outreach services. If you want to use paid ads on social media, please reach out to your project manager who can help facilitate this process. For more information about our outreach efforts, please click here.
We typically need two weeks to recruit. If we are recruiting on best efforts or are utilizing outreach, it is best to have a few extra weeks to recruit.
We send out an email to our patients that includes study information and a screener link. We do not screen by phone.
This varies from study to study. We typically see a 10% drop in the second wave.
If we are using our standard set up we are happy to schedule patients after you have reviewed their screener questions. There will be an additional $50 per complete for us to manually schedule patients.
We do not provide moderation, translation, or tech checks.
We work in the United States, Canada, the United Kingdom, Italy, Spain, Germany, France, Australia, and New Zealand.
We recruit patients across the United States at disease-specific patient events, which are held in both rural and urban areas. Some geographic areas where we recruit are more ethnically diverse than others, and by virtue of that, the patients we recruit reflect that diversity. That said, we target specific diseases, and in many conditions the diversity is reflected in the disease area itself, as some diseases are more prevalent in specific populations (e.g., African American, women, etc.). We are connected with organizations across the world, which are focused on disease areas rather than specific races/ages/genders. Additionally, we promote our study opportunities through our social media accounts. Another area of DEI which is not as well targeted by some recruiters is disability, and many of our patients have visible and invisible disabilities. We ask patients to include their ethnicity, gender, and age when they initially sign up, but it is an optional question and does not impact their ability to join the Rare Patient Voice panel.
We work with patients and family caregivers. We do not recruit HCP’s or have a general pop panel. We do not recruit patients from a client list.
We keep our prices standard across all clients. We even publish them on our website so everyone knows they are paying the same rate.
We keep our response rates as accurate as possible and are always cleaning our panels. We try to remove unresponsive patients so we can provide the most accurate feasibility possible. We modify our incidence rates based on the screening criteria you provide as well as our prior experience with similar projects.
We typically need materials by 3:30 PM ET.
Patient time is valuable! We pay patients at a rate of $120 per hour. We compensate patients $20 for screeners which take patients more than 10 minutes. For screeners 15 minutes or more, patients earn $30.
For multiple screeners, additional set- up costs apply. Please let us know and we will provide updated pricing.
We have a patient access fee for each phase of your study. We spend a great deal of time and money so we have these patients when you need them.
We have a $500 set up fee for each wave of the study.
We do not allow PII to be captured for quant studies. For qual studies, we will ask your team to sign our PII agreement to protect the patient and Rare Patient Voice.
We screen patients by email. We do not screen over the phone. We are happy to have your team screen our patients by phone.
Yes, there will be an additional fee for each portion of the study. We have a patient access fee and will pay patients for their time.
We recruit patients and caregivers at patient events as well as through our referral program with advocacy organizations and support groups.
For questions about an open study, please email Ben Shedlock: ben.shedlock@rarepatientvoice.com.
For billing and invoice questions, please email Becky Michael: becky.michael@rarepatientvoice.com.
