• Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

Advocacy Group Partnerships

Rare Patient Voice partners with patient support and advocacy groups in several ways to increase donations. Here are a few of the mutually beneficial ways our patient advocacy group partnerships work.

  • Request a referral link. You can invite patients and caregivers via email, your newsletter, or other means to contact us.
  • Ask Rare Patient Voice to sponsor one of your events. In these support group sponsorships, We invite our members to sign up while we exhibit at the event.
  • Contact us at ContactUs@RarePatientVoice.com to do a free online survey of your members and provide you with the analyzed results.
  • We can also provide support for fundraising efforts of your patient advocacy group. Get more information when you get in touch with us.

Rare Patient Voice understands that advocacy groups need to keep the interests of its members at the forefront. We promise the following in all our partnerships:

  • We will never ask an organization for members’ names or contact information.
  • Organizations can provide members with our information so that members can contact us about joining voluntarily only if they are interested.
  • We respect the privacy policies of all organizations with which we partner.

We are honored to have worked with over 780 advocacy and support partners to help us recruit patients and caregivers! View some of the advocacy groups we have worked with.

Interested in Becoming a Referral Partner?

Click Here to Sign Up!

Latest Blog Posts

  • RPV Basics
  • How much detail to reveal in survey invitations?
  • Impact of the Covid-19 Pandemic on Rare Disease Patients and Caregivers
  • Join Rare Disease Day 2021
  • Is Telehealth Here to Stay?

Check Out Our YouTube Channel!

https://youtu.be/kPihaNOjekw
HTML tutorial

Read Our Newsletter

Read our Newsletter
What’s New at Rare Patient Voice?

Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(410) 218-0527

For Patients

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Read our blog for patients
  • Privacy Policy

For Related Groups

  • Are you an advocacy group for a rare disease?
  • Are you a researcher?
  • Read our blog for businesses

        
   

Rare Patient Voice, LLC, Market Research, Towson, MD
©2020. Rare Patient Voice. All Rights
Reserved. Privacy Policy. Disclaimers. Sitemap

©2021 . All Rights Reserved.

Copyright © 2021 · Genesis Framework · WordPress · Log in

Search Our Website