My name is Colleen and I’m an RPV Patient Panelist who’s overcoming Pulmonary Hypertension
I feel happy that I am able to participate in doing surveys for Rare Patient Voice because we don’t really have anywhere to go besides our own maybe private Facebook groups or other social media groups to relate to others with this disease. I feel that doing these kinds of surveys for Rare Patient Voice is helpful for others to learn about different chronic illnesses. Living with my illness is something that so many people don’t understand what it is or how I feel on a daily basis and I think that doing surveys for Rare Patient Voice allows others to hopefully realize that it’s a tough disease to go through and living with a chronic illness in general is really not always very easy
