We are proud that with the help of many of you we have sent gift cards for more than $92,000 to new patients/caregivers and referrers in 2014. I wanted to let you know of a change to our policy before it goes into effect on January 1, 2015. At that time, the value of the gift cards will be $5 (instead of $10) to all new patients and caregivers who sign up on line at www.rarepatientvoice.com/sign-up, and also to all referrers. The reasons we are making this change are:
- To continue to welcome new patients and caregivers across most rare disease categories, even if we don’t currently have request for surveys among those patients
- Believe it or not, we continue to receive many fraudulent entries on line; we need to discourage that so that we can continue to provide the gift cards to legitimate patients and caregivers
For new patients and caregivers, they will still be given the choice of Amazon, Starbucks, or Dunkin’ Donuts gift cards. The new rate of $5 will be clearly stated on the website. Referrers will continue to receive Amazon gift cards.
There will be no change to the cash rewards provided to patients or caregivers for completing surveys. That will continue to be about $100 for each hour of their time. We are proud that we have paid over $250,000 to patients and caregivers in 2014 for completing surveys. An even greater value has come from the results of these surveys helping the sponsors to improve medical products and services.
Please encourage those you have referred to sign up by December 31, 2014 so that you and they will receive $10 gift cards.
Those who sign up in person at patient events will still receive a $10 gift card.