Rare Patient Voice, LLC provides patients and caregivers with rare diseases an opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
While we started by focusing on rare diseases, we now welcome patients and caregivers with all medical conditions.
Rare Patient Voice takes an active approach to meet patients at conferences and events. Our phone is always open to members. The more we can engage with patients, the more we can advocate for them and help their voices be heard.
We have learned that it is important to patients and caregivers to be able to give their opinion. It is also important to get your rewards in a timely manner. We are proud to have rewarded patients with over $6 million since our founding! At Rare Patient Voice, we pledge to qualified patients and caregivers that we will:
- Send you the $5 gift card of your choice
- Send you a check within a week of when the study is completed