• Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Careers
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
      • Multiple Myeloma
      • Epilepsy
      • Non-Small Cell Lung Cancer
      • HIV
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • The Long and Winding Road to Care
    • Health Literacy Initiative’s PSA
    • Patient Perspectives on Clinical Trial Participation
    • Patient Journeys and Insights for Oncology and Rare Diseases
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Careers
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
      • Multiple Myeloma
      • Epilepsy
      • Non-Small Cell Lung Cancer
      • HIV
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • The Long and Winding Road to Care
    • Health Literacy Initiative’s PSA
    • Patient Perspectives on Clinical Trial Participation
    • Patient Journeys and Insights for Oncology and Rare Diseases
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping patients and caregivers share their voices

A Million Dollars

October 10, 2016 Wes Michael

Rare Patient Voice gives me the opportunity to provide my input.

In the past few weeks we have been on the road attending conferences, walks and 5K runs in support of our patients!  ‘Tis the season!  This weekend we attended a Juvenile Diabetes Research Foundation walk in Colorado Springs, CO, a Kidney Disease Walk in Philadelphia, PA and a 5K run for Mental Health in Towson, MD!  We have also made great strides with our Parkinson’s, Huntington’s, and Cluster Headache panels recently.  We really enjoy meeting our patients and caregivers in person and hearing their stories.  Many panelists visit our Rare Patient Voice booth to tell us how happy they are that they joined our panel and how much they enjoy participating in studies.  We are so glad to be able to connect the patients with our clients and vice-versa.  A win-win on all accounts!

Recently, we achieved an important milestone!  Rare Patient Voice has paid patients and their caregivers over one million dollars since the company’s founding in 2013!  We are so proud that we are able to help patients in a small way.  We heard from patients who use the money to buy supplies which are not covered by insurance, and others who donate money to their support groups or foundations.  It is not only about the money though.  As one patient stated, “The money is nice, but getting our voices heard is amazing!”

Rare Patient Voice has over 100 different panels representing over 30,000 patients and caregivers in the US and Canada.  While originally focused only on those with rare diseases, Rare Patient Voice also has panels of patients with more common conditions such as Diabetes and Asthma.  The company’s vision is to be the catalyst for patients in all disease categories to share their experiences confidentially with pharmaceutical companies, medical professionals, academics, health outcomes and economics researchers, and others who can make a difference in their disease categories.

Let us know how our patients and caregivers have helped you!  We would love to share that information with our panelists.

As always, see our latest patient panels and counts: https://rarepatientvoice.com/for-biopharma-and-market-researchers/.

 

Filed Under: Business

Latest Blog Posts

  • Real & Rare with Sarah: The Stages of Life with a Rare Disease
  • Weekly Warrior: Meet Rachel
  • The Rare Disorder Podcast interviews RPV’s Wes Michael
  • Weekly Warrior: Meet Sam
  • Real & Rare with Sarah: Make Time for You

Check Out Our YouTube Channel!

https://youtu.be/cfjkqh5Ykp0

Read Our Newsletter

Read our Newsletter
What’s New at Rare Patient Voice?

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949


Visit our international site, rarepatientvoice.global


Careers


For Patients

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Read our blog for patients
  • Privacy Policy

For Related Groups

  • Are you an advocacy group for a rare disease?
  • Are you a researcher?
  • Read our blog for businesses

   Instagram

     

Rare Patient Voice, LLC, Market Research, Towson, MD

©2022. Rare Patient Voice. All Rights
Reserved. Privacy Policy. Disclaimers. Sitemap

©2022 . All Rights Reserved.

Copyright © 2022 · Genesis Framework · WordPress · Log in

Search Our Website

We use cookies to ensure the best experience with Rare Patient Voice. By clicking “Accept”, you agree to our privacy policy.
Privacy Policy   |    Cookies    |    Accept
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT