In the past few weeks we have been on the road attending conferences, walks and 5K runs in support of our patients! ‘Tis the season! This weekend we attended a Juvenile Diabetes Research Foundation walk in Colorado Springs, CO, a Kidney Disease Walk in Philadelphia, PA and a 5K run for Mental Health in Towson, MD! We have also made great strides with our Parkinson’s, Huntington’s, and Cluster Headache panels recently. We really enjoy meeting our patients and caregivers in person and hearing their stories. Many panelists visit our Rare Patient Voice booth to tell us how happy they are that they joined our panel and how much they enjoy participating in studies. We are so glad to be able to connect the patients with our clients and vice-versa. A win-win on all accounts!
Recently, we achieved an important milestone! Rare Patient Voice has paid patients and their caregivers over one million dollars since the company’s founding in 2013! We are so proud that we are able to help patients in a small way. We heard from patients who use the money to buy supplies which are not covered by insurance, and others who donate money to their support groups or foundations. It is not only about the money though. As one patient stated, “The money is nice, but getting our voices heard is amazing!”
Rare Patient Voice has over 100 different panels representing over 30,000 patients and caregivers in the US and Canada. While originally focused only on those with rare diseases, Rare Patient Voice also has panels of patients with more common conditions such as Diabetes and Asthma. The company’s vision is to be the catalyst for patients in all disease categories to share their experiences confidentially with pharmaceutical companies, medical professionals, academics, health outcomes and economics researchers, and others who can make a difference in their disease categories.
Let us know how our patients and caregivers have helped you! We would love to share that information with our panelists.
As always, see our latest patient panels and counts: https://rarepatientvoice.com/for-biopharma-and-market-researchers/.
