I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say?
Make your voice heard by participating in paid surveys, interviews, and online communities!
Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!
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Already a member?
Update your profile here!
Learn about our Referral Program for individuals and advocacy groups.
In addition to the US, we also recruit patients and caregivers for studies in Canada, the UK, Germany, France, Italy, Spain, Australia,
and New Zealand! Click here to visit the RPV global site.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Interested in sharing your story through a video recording? Sign up here.
Click the arrow to advance to more videos!
Why Sign Up with RPV?
Provide your input to improve products and services.
Help companies and researchers focus more on your disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
Already a member? UPDATE YOUR PROFILE!
Patient Blog Posts
Client Blog Posts
Weekly Warrior: Meet Mackenzie
Our latest Weekly Warrior is Mackenzie, caregiver to her son Josiah. He lives with Familial cold autoinflammatory syndrome, a rare genetic disorder characterized by episodes of rash, fever, and joint … READ MORE
Pam Cusick, Featured Member of Learning Disabilities of America Assoc.
Last month in Orlando, FL, RPV Senior Vice President Pam Cusick delivered a powerful multimedia presentation on neurodiversity and workplace accommodations at the 61st Annual Learning Disabilities Association of America … READ MORE
Pam Cusick, Featured Member of Learning Disabilities of America Assoc.
Last month in Orlando, FL, RPV Senior Vice President Pam Cusick delivered a powerful multimedia presentation on neurodiversity and workplace accommodations at the 61st Annual Learning Disabilities Association of America … READ MORE
RPV Celebrates the Rare Community, on Rare Disease Day and Everyday
Towson, MD, 2.29.2024 – For over a decade, Rare Patient Voice (RPV) has empowered patients and family caregivers to have their voices heard through participating in research studies. On this … READ MORE